9. PATIENT PORTAL WITH HOME ACCESS TO ELECTRONIC MEDICINE RECORD (EMR) FOR PATIENTS WITH RHEUMATOID ARTHRITIS
Electronic Medical Record, Patient Portal, eHealth Literacy, co-creation
In this project we examined if a patient portal with information, possibilities for online monitoring, and home access to EMR could improve patient empowerment. In order to construct a portal that would suit the wishes and needs of the end users, various needs assessments among patients and caregivers were conducted. In addition RA-patients ‘eHealth literacy-levels’ were measured in an observation study. During the developmental phase, we tested various low-fi and high-fi prototypes of the portal among stakeholders. The final portal was tested in a pretest-posttest study among 360 RA-patients. We examined the usage, satisfaction and the impact on: satisfaction with care, trust in rheumatologist, self-efficacy in patient-provider communication, feelings of control, illness coherence, and medication adherence.
This project was financially supported by Pfizer Inc and MSD BV. In this project we collaborated with the Rheumatology departments of the Medisch Spectrum Twente