9. PATIENT PORTAL WITH HOME ACCESS TO ELECTRONIC MEDICINE RECORD (EMR) FOR PATIENTS WITH RHEUMATOID ARTHRITIS

Researchers:

PhD Candidate: Roos van der Vaart. Other involved researchers Stans Drossaert, Erik Taal, Mart van de Laar

Key words:

Electronic Medical Record, Patient Portal, eHealth Literacy, co-creation

Abstract:

In this project we examined if a patient portal with information, possibilities for online monitoring, and home access to EMR could improve patient empowerment. In order to construct a portal that would suit the wishes and needs of the end users, various needs assessments among patients and caregivers were conducted. In addition RA-patients ‘eHealth literacy-levels’ were measured in an observation study. During the developmental phase, we tested various low-fi and high-fi prototypes of the portal among stakeholders. The final portal was tested in a pretest-posttest study among 360 RA-patients. We examined the usage, satisfaction and the impact on: satisfaction with care, trust in rheumatologist, self-efficacy in patient-provider communication, feelings of control, illness coherence, and medication adherence.

Partners:

This project was financially supported by Pfizer Inc and MSD BV. In this project we collaborated with the Rheumatology departments of the Medisch Spectrum Twente

Product:

Thesis: Rheumatology 2.0: Empowering patients by eHealth (2013)