Inflammatory bowel disease, questionnaire, disease control, patient perspective, psychometrics
The ‘IBD-control’ is a short questionnaire developed in the United Kingdom to measure disease control in inflammatory bowel disease from the patient’s perspective. The IBD-control showed to be a rapid measurement tool with the ability to identify IBD patients with good disease control. Goal of the project is to cross-culturally translate the IBD-control for use in the Netherlands, and validate the Dutch version in the IBDREAM , a prospective multicentre IBD registry. The IBD-control has been translated into Dutch using a standard forward-backward translation procedure, and a cognitive pre-test was performed with five patients using the Three-Step Test Interview method. The final version of The Dutch IBD-control is evaluated for test-retest reliability, validity and responsiveness in 998 patients with IBD who participate in IBDREAM. In this registry patient reported outcomes and clinical data are routinely collected.
IBDREAM; MST, Radboud UMC
2015 - 202