Expert Workshop, Values in Translational Research

donderdag 22 november 2012, 9:00 - 23:59

In recent years, ‘translational research’ (or ‘translational medicine’) has become a buzz-word in the biomedical domain. Translational research has been proposed as a way to achieve a more effective move (‘translation’) from scientific insights to relevant and useful applications in health care, and ultimately to health benefits. The surge of interest in ‘translation’ can be understood as an attempt to ensure that (public) funding for biomedical research results in value creation (in a broad sense), and thus may improve the science-society-relationship.

From a societal perspective, timely reflection on the feasibility and desirability of proposed innovations is crucial. Such an early reflection can contribute towards innovations that are ethically acceptable, socially robust and widely used. A well-established method of generating such early reflection is to engage future users and stakeholders early on in the development of new technologies. In the field of translational medicine, however, such early engagement of future users has not received systematic attention yet.

On November 22-23 we will organize an expert workshop to explore whether and how patient involvement could contribute to the development of responsible translational research. International experts from different disciplines will share their insights, experiences and ideas on patient engagement in translational research, based on their particular expertise.

In this workshop we aim

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to reflect on the role of values in the ideals and current practices of translational research

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to explore the role of ethical reflection in and on translational research

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to explore the opportunities and pitfalls of patient involvement as a way to enhance ethical reflection within translational research.

If you are interested to participate in this workshop, you are more than welcome. Please register before November 1 . https://congress.utwente.nl/usr/php/congress.php?id=88 Participation fee of €70,- will be charged, covering coffee, tea and lunches and dinner; or €45, if you don’t join the workshop dinner. You are requested to make your own hotel arrangements. www.Drienerburght.nl. For route to Twente University please check http://www.utwente.nl/en/contact/route/

Four topics will be focused on:

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Patient involvement in translational research

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The value of translational research: a policy perspective

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Values in translational research practice and the role of ethics

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Patient involvement in scientific research

These topics will be covered by

Prof. dr. Ulrike Felt (Department of Social Studies of Science, Vienna, Austria)

Dr. Francisca Flinterman (Health & Society – Wageningen University, Netherlands)

Dr. Jonathan Kimmelman (Biomedical Ethics- MCGill University, Montreal, Institute for Health MagenCanada)

Drs. Anna Laura van der Laan (Department of Philosophy - University of Twente, Netherlands)

Dr. Jason Roberts (Center for Biology and Society - Arizona State University, Phoenix, USA)

Dr. Roald Verhoeff (Institute for Science, Innovation & Society - Radboud University, Netherlands)

Dr. Etienne Vignola-Gagné (Fraunhofer Institute for Systems and Innovation Research - Karlsruhe, Deutschland)

Plus by the organizers:

Dr. Marianne Boenink (Department of Philosophy - University of Twente, Netherlands)

Dr. Simone van der Burg (IQ Healthcare - UMC st Radboud, Netherlands)

Dr. Elisa Garcia Gonzalez (IQ Healthcare - UMC st Radboud, Netherlands)

Dr. Lieke van der Scheer (Department of Philosophy - University of Twente, Netherlands)

Respondents are:

Dr. Maud Radstake (Center for Society and the Life Sciences, Nijmegen, The Netherlands)

Dr.Hester van de Bovenkamp (Institute for Health Policy and Management, Erasmus University Rotterdam, Netherlands)

Dr. Annelien Bredenoord (Julius Center, University Medical Center Utrecht, Netherlands)

We hope to welcome you in Enschede in November.

Dr. Lieke van der Scheer and

Dr. Elisa Garcia Gonzalez

Dr. Marianne Boenink

Dr. Simone van der Burg

Contact address:

Mrs. Petra Bruulsema

P.Bruulsema@utwente.nl

Department of Philosophy

Faculty of Behavioural Sciences

University of Twente.

P.O. Box 217

7500 AE Enschede

The Netherlands

The workshop is organized within the framework of the project Patient involvement and ethical reflection in translational research. The research is funded by the CSG Centre for Society and the Life Sciences, an initiative of the Netherlands Genomics Initiative, and CTMM Centre of Translation Molecular Medicine.

To register:

https://congress.utwente.nl/usr/php/congress.php?id=88

Route:

http://www.utwente.nl/en/contact/route/

Hotel accommodation:

To book a room at Conference hotel Drienerburght go to the website www.Drienerburght.nl .

- fill in arrival- and departure date, press button “Check availability”
- press link “Book with access code”
- fill in “VALUES”,  press Login
- choose a single or twin-bedded room, press button “book”
- fill in the reservations form

To book a room at Accommodation Logica go to the website www.Drienerburght.nl .

- go to the link “ Logica website”
- press button “Reservation”
- press button “Hotel room reservation”
- fill in the reservation form
- fill in: I take part in the conference “VALUES”

To make a reservation via our website you need a credit card number with expiration date.
If you don’t have a credit card please contact us by phone of e-mail.